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Floral 18

       


Molly E. Wagner

April 12, 1988 ~ February 22, 2019 (age 30)

Molly Eaton Wagner, beloved daughter of Peter and Kathryn Wagner, died on February 22, 2019 after a long struggle with bowel disease. She was born on April 12, 1988 in Portland, ME. Molly was diagnosed with a rare genetic condition, Cornelia de Lange Syndrome, shortly after birth.

Molly deeply touched the lives of all who knew her. Her small stature belied her tenacious spirit. Although she never spoke a word, Molly taught us lessons every day of her short life. Most importantly, to slow down and appreciate the simple pleasures in life

She loved snuggling up on the couch with her family and friends, a roaring fire in the fireplace in the winter, a gentle ocean breeze on a beautiful day, the feel of water running across her hands, the crunch of sugar wafer cookies and her signature toy, “the Winkel”. She never left home without one, and there is one in almost every room of her home. (And there always will be).

Molly was warmly welcomed into the York School system in 1993. She weighed 17 pounds when she started Kindergarten at Village Elementary School. She had many compassionate and caring teachers, ed techs, therapists, staff members, and classmates over the years. She was a friend to any child that didn’t have one. Molly provided a social safety net for many children that struggled to fit in. She taught so many children and their parents to be comfortable with differences. That legacy is now being passed on, as her peers become parents themselves. Her circle of positive influence will continue even after her death.

 

Molly loved her amazing team of caregivers, her very best friend for 25 years,Kathleen Browne, and also Suzanne Campbell, Lila Hamilton, Shannon Ssenyondo, Marissa Sevigny and Shannon Carter. Our family is so grateful for your loving and meticulous care of our daughter. You were her world.
 

Our family is eternally grateful to the many physicians and nurses both local and at Boston Children’s Hospital that cared for Molly over the last 30 years.   We are especially grateful to the PACT Team at Boston Children’s, who oversaw Molly’s end of life care.

Molly is survived by her sister, Erin Morgan, Erin’s husband Michael Morgan, and their son Charlie Morgan, of York; brother Seth Wagner and his fiancé Ashley Chenevert of Redmond, WA; and, many aunts, uncles and cousins.  

Molly is pre-deceased by her grandparents, Norma and Warren Strout of Bangor, ME and Bud and Jane Wagner of York, Me.

 

Burial will be private.
 

A celebration of Molly’s life will be held on her birthday, April 12th, at the Cliff House, 591 Shore Road, Cape Neddick, ME 03902 from 3-6 pm.  All are welcome.

In lieu of flowers, donations may be made to:

The Cornelia de Lange Syndrome Foundation

302 Main Street #100

Avon, CT 06001

www.CdLSusa.org



 

 

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